I’ve talked before about the fact I have Hypermobility Syndrome (HMS), and a bit about how it impacts on my life. In the last week or so I’ve read a couple of blog posts that are entirely brilliant on this subject and so I wanted to share them here.
First up is this excellent post from Disability in Kidlit on Hypermobility and its representation. The author talks eloquently about her HMS, and while her story is not my story there are a significant number of parallels. She also talks about the lack of books that feature Hypermobility, I want to take this opportunity to highlight two books that I’ve read in the last couple of years:
Spotlight on Sunny by Keris Stainton and The Pants Project by Cat Clarke both feature characters with Hypermobility Syndrome. Both books made me cry, because seeing myself on the pages of a book I was reading was important and had been missing for all of my reading life until this point. Representation really, really does matter.
The second post I wanted to share was this one from Hannah Ensor’s Stickman Communications blog. It’s one of the best analogies I’ve seen for what life is like when you have variable pain and fatigue levels. It’s excellent and one I wish everyone in my life would read and understand.